Estate Planning. This refers to steps individuals or couples take to direct what will happen to their money and other assets after death. One aspect of future planning, this process is helpful for people in all types of financial situations. Most people want to direct how their money or assets will be distributed, minimize taxes as well as choose who will care for their minor children. Your parents may name people who will provide support for you. They may accomplish this by setting up a plan that includes a will, letter of intent, special needs trust and/or other pertinent documents.
Note: Your family should seek an attorney who understands not only estate planning issues but who also is knowledgeable about government benefits and understands the needs of people with disabilities.
Government benefits. Both financial assistance and health care benefits are very important for people with disabilities. Many parents think that they should not leave money to their child with a disability or their child will lose public benefits such as Supplemental Security Income (SSI) or Medicaid. Please discuss this with your lawyer, as money left outright to a child could jeopardize benefits if assets are above the statutory threshold.
The fact that someone is receiving benefits should be incentive to begin planning. A plan can ensure that a person keeps needed benefits and is able to use the additional assistance from family to purchase items that government benefits do not cover to enrich his/her quality of life.
The Achieving a Better Life Experience Act of 2014 (ABLE) states that its purpose is to (1) encourage and assist individuals and families in saving private funds for the purpose of supporting individuals with disabilities to maintain health, independence, and quality of life; and (2) provide secure funding for disability-related expenses of beneficiaries with disabilities that will supplement, but not supplant, benefits provided through private insurance, title XVI (Supplemental Security Income) and title XIX (Medicaid) of the Social Security Act, the beneficiary’s employment, and other sources.
What else do you need to know about the ABLE Act? Michael Morris, Executive Director of National Disability Institute, gives us six steps for ABLE account planning in 2015.
Source: Planning Now: A Guide for Parents of Children and Adults with Developmental Disabilities
The Agency for Persons with Disabilities works in partnership with local communities to ensure the safety, well-being and self-sufficiency for persons with developmental disabilities throughout Florida. The agency provides assistance to identify the needs of people with developmental disabilities and funding to purchase supports and services. The developmental disabilities identified in Florida law are: Spina Bifida, Autism, Cerebral Palsy, Prader-Willi, Down Syndrome and Intellectual Disability. Medicaid Waiver helps people to receive long-term care in the community and it is through Agency for Persons with Disabilities. The Agency for Persons with Disabilities provides support coordinators to assist both children and adults in identifying and securing the supports and services they need to live, work and play in places they chose.
The Florida Department of Children and Families
Determines eligibility and ongoing case management of food assistance (food stamps), temporary cash assistance and Medicaid for families with children or older adults who are blind or disabled.
The Social Security Administration
Manages applications for disabilities (SSI, SSDI). Provides information regarding benefits on a walk-in or appointment basis. Offices located in Sunrise, Fort Lauderdale, Pembroke Pines and Margate.
Goodman Jewish Family Services of Broward County
Joshua’s Path Educational Seminars
Free seminars that are specifically designed to provide caregivers and community professionals with the resources and information needed to make life decisions for family members and clients with disabilities. Topics include funding and benefits, navigating social security, legal and financial planning, residential options, vocational training, adult day programming and mental health resources.